Negatively Positive

Not long ago, I was filling in a new-ish friend on some of my trauma lore -- 2015, the miscarriages, and the early years of my marriage.

 

That last bit is something I have not really spoken to anybody about. I had already learned that honesty was an offence punishable by public dismemberment and being buried alive, plus I couldn't reconcile being honest about the pain while simultaneously loving my husband. I shut down. I spent probably four years in an eternal present. I had no past and no future. No thoughts besides how to prevent the next blowup or smooth over the current one.

 

Early on, I had been messaging my friends about my confusion at his sudden change in attitude. How the calm, generous listener had overnight started screaming insults over basic use of the English language. Their response was unanimous: Leave him.

 

The thought was very tempting, I won't lie. But I had seen who he had been before, and I was unwilling to believe that kind act had been only an act. This isn't who he is. He wasn't always like that. It has to be just stress or something.

 

When I tried to explain this, with my rapidly-decreasing ability to think (let alone write) in comprehensible English, they escalated. I will not watch you self-destruct. If you don't leave him, I will not be a part of your life.

 

How do you respond to an ultimatum like that?

 

I had been friends with some of these people for over a decade. I had helped most of them through life-threatening crises of their own. I had offered so much time and energy to them freely, even in times when my own life was crumbling. Now I was in crisis, and they could not remember the times I had moved heaven and earth to help them through worse.

 

I don't have the mental capacity for your problems as well as my own, they told me, one by one. I can't handle your negativity. Don't bring me into your problems anymore.

 

But it won't always be like this. It'll get better... right? Marriage is hard and we're both learning and it'll get better, it just sucks right now.

 

I was speaking to an empty room by the end, with only my own voice for company.

 

It has to get better. This isn't who he really is. I made him a promise. I made a vow before God.

I promised. 

 

I hung onto that thought with all my strength. But my fingers were slipping. 

 

Five years earlier, when my world had crumbled around me, when the Angel of Death took a combine harvester to every part of my life, the friends who didn't die in the devastation turned on me: you're too negative. You always see the worst in everything.

 

Now, as my loving husband turned into a monster before my eyes, as I clung to the insane hope that this was only a season and not an eternal condemnation... my friends still left me. I chose to look for a sunrise while buried alive, and that still wasn't good enough.

 

When everybody died, I was too negative, too sad. When my husband turned out to be a real-life Jekyll and Hyde, I was too positive, too hopeful.

 

Make it make sense.

 

Like if you hate my guts and are just looking for an excuse to cut me out of your life -- this is a Pro-Tip, by the way, take notes -- just say you hate my guts. Just be honest. Don't do this 'you're too X' song and dance. It's like trying to kill a grizzly bear with a spoon -- it takes way longer than necessary, and everyone involved feels way more pain than they needed to.

What's more, I am sorely tempted to message every single one of those people who couldn't find a scrap of compassion in their hearts -- hearts that in some cases were still beating because of me -- and tell them you know what? I was f--king right.

 

We are coming up on another wedding anniversary. If anything, we are happier now than we were even in those early days of dating. And if I had followed their advice and left him, he would be dead and honestly I might be too.

 

 

P.S. -- Do you want to know what the problem was? Why my husband went from sweet, romantic, caring, and generous to angry, manipulative, vicious, and did I mention angry?

An allergy.

A food allergy to a very common seasoning.

By the time I convinced him to go to the doctor about it, it had mutated into five other major chronic health conditions which we are still trying get treatment for, to say nothing of the ongoing emotional fallout for both of us individually and in our marriage. Our marriage still exists only because I'm a stubborn German who is still too bitter about my uncle leaving my aunt (for literally zero reason) to give up on my own marriage for any reason at all.

One Month Of Vacation

Today marks one month since the day we drove away from our decrepit old apartment in the desert and did not come back.

 

I drove past it a few days ago. There were no Christmas lights on the balcony, for the first time in five years... I have always made sure to put up at least one strand of Christmas lights. And they are up... just not at the blue apartment.

 

It still feels like we're on vacation in a beautiful little guest house, with our Christmas tree and my husband's streaming setup and my grandma's rocking chair and my husband's mead-making station and all my plants on their stand. It still feels like one day we'll wake up and we'll have to leave and go back 'home' to the desert apartment with the spiders and the mice and the four-storey hike one-way to the laundry room and the cinderblock walls with no storage that pressed in around us.

I cried when we left... I was shocked at that. While there were memories in that apartment, most of them were bad ones... ones of my husband so sick that he was quite a different person, one who screamed and threw things and allowed his relatives to dictate my life without standing up for me. Those are all memories that dominated that place and dominated our first three years of marriage, before we were finally able to diagnose and cut out a food allergen that was wrecking absolute havoc on his brain.

I am so grateful for this new place, for the storage space and the natural light and the general livability and lack of lead pipes and the quiet streets. We have heard one (1) vehicle the entire time we've lived here. At the old place we were both routinely woken at night (sometimes multiple times) by people street-racing in souped-up Fords at 3am. I sleep like the dead (I have had roommates consider calling 911 because I sleep so deeply) and even I was sleeping poorly.

I'm not sure whether I should treasure those troubled memories of early marriage or if I should be happy to turn my back on them. I don't want to forget how much better things are now. Both my husband and I are coughing less. We can drink the water straight out of the tap and it tastes delicious. We get curbside recycling pickup... there wasn't even a recycling depot in the town where we used to live (let alone pickup) until mere months before we moved. We have more of a social life already than we ever could have dreamed of in the old town. This is an upgrade in every way.

 

I am struggling to set up my dance studio. I have the flooring pieces (although I do want my larger one from my parents' house), and the room is almost cleaned up (it's been a disaster for most of the time we've lived here because it was one of the lower priorities for unpacking and organization). I'm struggling to want to. I don't know if the stress of moving (and work -- currently in the middle of a show that breaking ticket sales records for the theatre as well as launching ticket sales for next season) is zapping my motivation, or just thinking of all the times I've tried and failed to get dance going again since I've gotten married. I have an opportunity to teach in the new year, and I think I might take it... although last time I tried to teach choreography, I was raked over the coals for being 'unrealistic' and my co-worker actively sabotaged my work so I'm very nervous how it will go. I don't know if the flame of dance has died, necessarily, but it has certainly had a large amount of dirt shovelled onto it.

 

I also want to write again. NaNoWriMo 2023 was the last time I wrote anything longer than a blog post. I don't have any ideas, but I'm finding myself poking absentmindedly around for one. I mentioned wanting to write again to my husband the other day and for the first time in our entire marriage, he said something supportive instead of telling me how I'm wasting my time writing. It might be a while before I actually write something, but I'm open to an idea.

 

I don't know if I should post practice videos on Instagram again when I do start dancing. The world of social media changed significantly during the pandemic, right at the time my in-laws banned me from posting on it. It's an alien landscape to me now, all ads and fake positivity, both of which I have always avoided. There's a definite allure now to the thought of not posting a single thing about dance until I create my next major work... maybe during Nachmo? I do have the space for working out choreography now, so maybe I can do an honest-to-goodness Nachmo for once instead of just a thought experiment (I say that as if I didn't choreograph an entire one-woman show during Nachmo 2023 that got screened in their online festival and is now one of my highest-viewed videos on YouTube).

 

So far, both my husband and I are healthier and happier. I had hoped that this move would give us a place of peace where we can heal from the old wounds and grow into a life instead of just an existence.

 

So far... I think it just might be working. 

Uprooting My Brain

Yesterday I officially got prescribed ADHD meds. This comes three and a half years after actually being diagnosed.

While journaling helps my memory (sort of), it absolutely does not help my motivation (rather, the complete lack of it). Performing slightly more regularly seems to be helping my memory get back in shape a little bit, but there seems to be no way to trick my brain into accidentally being motivated to do boring things like washing the dishes and sweeping the floor.

Though I have the container of capsules beside me as I type, I won't be starting them till Monday. I'm literally opening a show out of town tomorrow, and if I'm deathly allergic to these capsules I would rather find that out when I'm not supposed to be holding a hundred or so people in a state of suspended reality.

I am very aware that as a creative person who still manages to at least flirt with the performing arts industry, it's likely the fantastically-fast and somewhat melodramatic ADHD mind that got me this far in the first place. I'm worried that the meds will dull my bright, shining (I hope?) artistic ideas. But on the other hand, I am sick to death of the screaming matches with my husband about whether or not I'm making his life miserable on purpose by not keeping the house clean.

I'm also afraid that these meds won't work. And then the screaming matches will continue with no hope of an ending in sight.

I'm not sure what to expect, or what I even want to happen. Is it unrealistic to hope that (most of) our marital difficulties can be solved with a pill? Should I even be seeking to change who I am and how my brain operates to be palatable to the man who is supposed to love me unconditionally (whether or not the change I'm attempting is successful)?

Even if it does help, it's not a magic bullet, and I'm afraid we'll both be disappointed that it's not. This is the last thing I can think of to try, and if it doesn't work... am I just going to have to resign myself to being yelled at for the rest of my life?

I know this isn't a permanent change. If I decide I don't like it, I can always stop the meds. But I worry that what I love about myself and what my husband hates most about me are both growing from the same root and if I kill the things my husband hates, it will also kill the things I lived for.

Creative Residency Update

I'm now two months into my God-sponsored creative residency.

 

I'm over three-quarters done my next major dance work (Smaller).

 

I've managed to get into four shows so far this year, with two more pending.

 

I've read three books so far.

 

I've started drawing in earnest, especially in these past few weeks.

 

I've done a lot of cross-stitching (on both my theatre jacket and my husband's).

 

I've noticed my memory is getting stronger. I'm in my biggest post-pandemic acting role yet, and... I wasn't even the last one off-book. It feels -- at this exact moment, anyway -- that maybe I can still have a viable theatre career despite everything. And maybe I don't have to destroy myself to do it... theatre is no longer my only reason for living. It's a huge part of keeping my mental health in shape and it still brings me much joy, but I don't have to be in four shows at a time to earn the privilege of breathing oxygen.

When there are no shows, I can spend time with my husband, and I can draw, and I can read. I also discovered the Sims, and that's the first computer game besides Spider Solitaire, Ultimate Yahtzee, and Minecraft that I'm both competent in and actually enjoy.

I have been very productive (see above), but I have also managed to learn to ACTUALLY relax, for possibly the very first time in my entire life. I'm a little worried about how re-integrating into the workforce next month will go (especially with my two biggest shows of the year so far ramping up around that same time), but these months off have been a much-needed break so far. I don't think I have properly let my mind, soul, and body rest since I was 18 years old. That was... well over a decade ago. I still wake up in the morning and have to consciously remind myself that I don't have any looming deadlines or responsibilities that day and that I can relax.

I do wish I was doing more creative things sometimes, but at the same time, I'm happy with what I've accomplished so far, and am happy to carry that momentum forward.

I'm also somehow less stressed about money? I did apply for (and receive) unemployment benefits from the government and what they're paying me is comparable to what I was making, but somehow we don't seem to run out of money as quickly. I don't know if I'm just less stressed in general which is carrying over to our finances or if we're being more responsible, or what, but I'm not going to argue. I'm just hoping that peace continues even after I go back to work.

 

The only thing I haven't done yet that I still want to establish before I go back to work is a dance studio. I want to start ACTUALLY moving my body again. I can feel it locking up, and I hate that feeling. But the only way out from stiffness is to get moving.

Sheeple

Two weeks ago my husband tested positive for COVID-19.

This meant I couldn't hug or kiss him or five days. But I'm grateful that it was only five days, and not a lifetime -- because the vaccine gave him a much higher chance of survival. I'm grateful he got COVID now, after he and I were double vaccinated, and not before, when it could have legitimately killed both of us.

It was terrifying seeing how sick he got, and I don't want to know how bad it could have been had he not been vaccinated. I wasn't feeling well either (but tested negative at first -- tested positive five days later), but he was truly in bad shape... and that was with the vaccine. I firmly believe that had he not been vaccinated, he would have died, and I would never get to hug or kiss him ever again. Five days is a long time, but a lifetime is even longer.

Call me a sheeple all you want, but the love of my life is alive today because of the vaccine. I and my crappy asthmatic lungs are alive because of the vaccine. My husband is alive and we still get to spend the rest of our lives together. If that makes me a sheeple, then I'm a sheeple. No regrets.

Bandwagon Update

I've now been bullet journaling for four months.

I've invested in a Leuchtturm 1917 (in pink, of course), and it is being put to good use. I put my habit tracker in there, along with the NaNoWriMo word count tracker that you've already seen in previous posts. There's a month-at-a-glace page that I stole right out of Ryder Carroll's The Bullet Journal Method, and I merged that spread with a colour-coded budget and a three-point-daily mood tracker -- all on a two-page spread. It's a lot of information all in one place, but that's exactly the point. The colour coding helps a LOT and it's really helpful to have events, money, and mental health information for a full month all at a glance in order to see patterns (particularly since money is a very strong predictor for my mental health). I've put a suicide safety plan spread in there as well with things to try to distract myself, people to contact (with phone numbers), and a list of reasons to live.

I wouldn't say the impact on my life is dramatic, but it's definitely noticeable. I'm remembering things now -- to the point where if I tell my husband that I wrote it down in the book, he knows I'll remember. This was a man who could not (and I think still can't) wrap his head around the concept of needing to write things down to remember them; a man who used to get angry and frustrated with me multiple times every single day because I forgot something and he couldn't understand how I could forget such important things so often. We still argue, but it's far, FAR less than we did before I started bullet journaling.

In the daily logs, I've been marking things that made me happy with a pink heart instead of a bullet. Everything else in the daily logs is written in my black pen, so the pink hearts really stand out. I have an unofficial goal to have at least one pink heart bullet per day. Some days I really have to reach for it, and some days it doesn't happen at all, but it's something to strive for. (Today there will definitely be a pink heart because the local Tim Horton's had a sprinkle and jam doughnut for literally the first time since I moved here in summer 2020.)

My journal is still not flowery or a crash course in visual design and probably never will be. Just colour coding numbers for the mood and budget trackers are enough to keep me busy. But it's practical and everything is in one place, and those are more important to me than prettiness.

Probably the thing I like the most about it is the fact that everything is in one place. I used to have one notebook for dance videos in the works, one for dance class notes, one for choreography in progress, one for writing ideas, one specifically for Kyrie, one for 'random stuff,' one for journaling my actual thoughts and concerns, one for scheduling appointments, one for budget tracking... all of those have been condensed into a 250-page dot journal and a $3 pack of pens from Wal-Mart (the Papermate InkJoy coloured pens, which bleed a little and can be a tiny bit gloppy, except for the black, but the colours are amazing, the price is right, and I will not write with anything besides Papermate because I love the feel of their pens. I've been a Papermate devotee since my early teens and I will stop using them when you pry my Flexgrip Ultra 0.8 from my cold dead hands).

To be perfectly honest with you, everything that has happened to me since summer 2019 is a complete blank in my memory. I don't remember much of anything from 2020. I can only call up the very vaguest of memories from my own wedding in August 2020. A good part of 2021 is gone as well. By the time I finished an eight-hour work shift, I would not be able to tell you anything that happened at the beginning of the same shift. I couldn't even hold a conversation outside of my semi-scripted drive-thru order-taker conversations because the meanings of concepts and words were just -- gone (which in turn impacted my ability to make art and engage with the people around me, which pushed me further into depression and isolation). I had no past, and therefore no present and no future. I felt adrift in an endless ocean where time didn't exist. It was not freeing, as one would be inclined to think -- in fact, it was terrifying. When there is no time, there is nothing else. Nothing exists. It was like being stuck in an abyss. I was losing myself. I had no idea who I even was anymore because I had nothing to look back on, no reference point. Having this journal is helping me feel more grounded and like I'm an actual person rather than just a phantom in a shadowland. I have 'yesterdays' again now, and I didn't for two years. I'm only just starting to rebuild an awareness of myself as a real human being who exists in a real place and not a featureless ghost floating aimlessly in an endless cloud, and so far this journal is a large part in that.

Maybe I'll even manage to remember another update in a couple of months.

ADHD

Originally written 13 September 2021, 11.40pm.

Two days before our first anniversary, I was diagnosed with ADHD and officially told I am on the autism spectrum. This is not a self-diagnosis for attention; this information came from a licensed neuropsychiatrist following an hour-and-a-half assessment and screening.

I was fully prepared for an autism diagnosis. I was not prepared, however, for ADHD.

This has rocked my world -- it explains SO MUCH. I’ve been reading through the NaNoWriMo Adult ADHD thread all day (13 September) and literally crying because all of it is me. Time blindness/underestimating how much time things will take, inability to switch tasks, hyperfocus, inability to focus on anything boring (including sleeping, which is why I will 100% stay up till 4am if no-one actively stops me), inability to just sit still, constantly being busy, brain constantly going a million miles an hour (turns out this is why my brain always feels like it's being eaten by acid), self-teaching myself everything under the sun, millions of brilliant and unfinished creative projects in my wake, constantly interrupting people, executive dysfunction…

I’ve been a dancer for 22 years, I routinely overloaded myself in college and mostly managed to get almost every assignment done hours before it was due (a famous example is when I wrote four papers and two final exams in 36 hours), all while still dancing 12-20 hours a week and keeping up a theatre career on the side (I’m also usually in three shows concurrently, and the only reason I still get away with this is because I’m always on top of things – if I miss a rehearsal for another rehearsal for a different show, I study my butt off and show up next rehearsal looking like I didn’t miss a thing). Twice I wrote two 50k novels in a month for NaNoWriMo because doing only one was too easy and I had enough plot ideas to sustain it. My mother was CONSTANTLY on my case for forgetting my chores and knew that if I was reading or engrossed in a project that nothing short of an atomic bomb under my seat could get my attention (and even then, it would take me a minute to realise where I was and that something was happening). I once choreographed an entire 4.5-minute dance piece for seventeen dancers start-to-finish in one single eight-hour sitting (during which I did not eat, drink, or go to the bathroom), and also recently finished a far less complicated five-minute dance for four people that took me seven years. There’s really no in between. I notoriously learn entire dance pieces three days before I perform them and then perform them better than everyone else in the piece (none of my teachers have ever known what to do with me).

I would never have known I had ADHD until the pandemic took all of my coping mechanisms away – theatre and dance had been giving me enough controlled chaos to keep me sane, and then when it was all taken away, my symptoms (both ADHD and autism) finally presented, big-time. At first I thought it was just depression, brought on by the stress of the pandemic and my first real romantic relationship/marriage, but luckily I follow a few autistic performers on Instagram who regularly post autism/ADHD memes, and I began to see myself in a few too many of these posts. I took my autism suspicions to my therapist, who told me how to go about getting assessed. The process happened very quickly, and it was at my autism assessment that I was screened for and diagnosed with ADHD.

I am not medicated yet, pending a more detailed autism assessment, and also because they want to put me on Wellbutrin and I've shied away because I am TERRIFIED of Wellbutrin. I have not met a single person who has had a positive experience with Wellbutrin. Everyone I know who has been on it has had severe side effects that were ten times worse than the issue that they were trying to treat. Plus, it only comes in pill form, and I can't swallow pills (thanks, autism-related/hereditary texture issues).

As difficult as life is with ADHD, I'm glad to have a diagnosis. Not only does it explain things that I honestly thought meant I was just a no-good failure and a waste of skin/God's punching bag, it also saved our marriage. My husband was constantly on my case for forgetting to do things and he would get extremely frustrated and accuse me of doing it on purpose and I would get angry because I was angry at myself for forgetting (again) and angry at him for not believing me whenever I tried to explain that I didn’t mean to forget things (that's literally what 'forgetting' means...?). Since my diagnosis, we went from screaming matches every other day to I think maybe one or two in the past month. It’s helped me understand myself and make a conscious effort to be more attentive to the things I forget that annoy him the most and it’s helped him understand me and be more patient with me.

There is still a lot to learn and a very, very long way to go. I've borrowed some books from the library to try to understand myself and how to function as an adult human in a world that I never did feel I belonged in. It's a lot to catch up on, and right now I'm feeling rather overwhelmed by it all... but I'll keep trying.

Stay tuned...