Showing posts with label my cousin. Show all posts
Showing posts with label my cousin. Show all posts

09 April 2026

Another Tuesday Night In April

Content warnings: hospitals/medical stuff (including needle mention), asthma/lung stuff, death, near-death experience
 
I spent most of Tuesday night/Wednesday morning in the hospital.
 
There's a lot to unpack here, and I'm mostly writing this to sort things out in my brain.
 
On Easter Sunday, we went to the in-laws' place for an Easter meal. This had been planned for a couple of weeks, so we dutifully woke up early to make the drive out. When we arrived, we found that 90% of the family had either had a cold within that past 48 hours or were actively in the throes of one. My husband's sister sounded like she'd been chain-smoking for centuries. If it wasn't for that, we may never have known. Nobody said a single word about being sick. Even the sister said at first that she'd just lost her voice yelling during a hectic card game the night before. Less than five minutes later, she was saying she caught it from her son.
 
Within hours, my husband was showing symptoms. He took it upon himself to sleep in the spare room to spare me. He had a very sore throat and complained of headache and joint pain -- just a regular, annoying cold.
 
Tuesday night, April 7th.
 
I was sitting at the kitchen table playing Core Keeper (I LOVE THIS GAME) and my husband was beside me at his desk, playing Valheim/Helldivers, depending which of our friends on the Discord call needed more help at the moment.
 
I started coughing more than usual around 7:30 or so and my immediate thought was 'oh no, I'm getting that cold too.' But the cough felt different than both my usual chronic cough and the cough I get when I have a cold. It was an abnormally dry, persistent cough that moved absolutely nothing, and it was happening after every. single. breath I took. Not intermittently, not every other breath, every single breath.
 
I noted that that was weird, but kept drinking my tea and kept playing the game. I took shallower breaths to try to avoid triggering the cough, and while that sort of helped, that also meant I was not getting as much oxygen. Focusing on the game became harder and harder, even though I tried to switch to more mindless in-game tasks like gardening. Finally I quit the game and rested my head on the table. Breathing was taking every ounce of my focus and I no longer had enough spare brainpower to hold up my head.
 
I slid to the floor and literally crawled to get my blue inhaler (maybe ten feet away, if that?). I laid on the ground for ten minutes trying to gather enough energy just to shake it. I managed one dose, at 9:30pm. My lungs were burning, like a chemical burn, like there was acid in my chest. I was trying to breathe slowly and calmly to avoid triggering a panic response on top of whatever was already happening.
 
The entire time I lay on that floor with the inhaler in my hand, I kept thinking of the girl who lived in the room next to mine in my freshman year of college. She was a bit of a writer too, energetic and empathetic, with that determined zest for life that many depression survivors have. I remembered reading the news stories that ran after she died of influenza in January 2020. Healthy to dead in eight hours. She had only been married for a few months. She had been so happy for those few months.
 
Was this what influenza felt like? Or was I just overreacting again?
 
My husband asked if I should go to the hospital. I said 'maybe,' and started packing a bag. Phone charger, extra sweaters, extra pair of warm socks, water bottle, my daily meds in case I wasn't home by morning.
 
Around this point, my chest muscles were becoming fatigued. After every exhalation my muscles were so exhausted that I didn't have the physical energy to trigger an inhalation. I would sit there in a fully exhaled state for a full 5-8 seconds before my automatic nervous system would kick in and force an inhalation. This was happening every breath. I considered calling an ambulance to transport me due to the fatigue, but the hospital was less than ten minutes away, and the decision to go to the hospital had given me enough adrenaline to stand. I drove myself.
 
By then it was 10:15. There were exactly three other cars in the entire parking lot. The place looked abandoned. I parked as close to the entrance as I legally could, shuffled very slowly to the door (wondering the entire time if I was overreacting by coming here), pressed the 'night call' button, and lurched through the automatic doors into a dark and completely deserted emergency room. A nurse appeared at a door to the side.
 
"Are you here as a patient?" she asked. I had no breath left to respond, so I just nodded. She beckoned me into the room behind her and got me registered and triaged, then led me straight into a room.
 
I fully expected them to do bloodwork and 'diagnose' me with anemia, the way every other doctor in the country has for sixteen years. But no needle appeared. The nurse listened to my chest in several places with a stethoscope, then the doctor came in and did the same thing. He quickly formed the opinion that I had a virus, and I feared I was going to be sent home to struggle, but I was not officially released. The doctor swabbed my nose for a COVID test, then left. After some interval of time (I was so focused on breathing that I didn't track how long), the nurse returned and deposited a pile of inhalers and a cup of water on my little side table.
 
It was then that I learned I was having a legitimate asthma attack.
 
She gave me a spacer and careful instructions on how many doses to take of each inhaler, then brought me a cup of applesauce with a Reactine and a Prednisone crushed and stirred into it (because I can't swallow pills). She returned yet again with a needle -- not for bloodwork, but to inject Toradol. I tried to argue that the pain wasn't that bad and probably a standard Advil would suffice, but I did not officially refuse so she went ahead and gave it to me.

I took all the inhalers as instructed, then got the medication slurry down (Prednisone tastes awful, even in applesauce).
 
Then... nothing, for a very long time. I drifted in and out of sleep, wrapped in all the sweaters I'd brought with me. The pain in my joints and my chest did ease up, a little.
 
Sometime around 1:00am, the nurse poked her head in to ask how I was feeling. I asked what exactly we were waiting for, and she said the doctor wanted to keep me for observation for a few hours.
 
That felt strangely validating. It meant they were actually worried about my condition and didn't feel safe just handing me a prescription and sending me back home. Content with their level of concern, I texted my husband an update and drifted back to sleep... no easy feat on such a hard bed.
 
Around 2am the nurse went off shift and was replaced. Shortly after, the doctor came in and gave me the option to stay the night or go home and rest there. As much as I wanted to ask to stay the night, the bed was so hard and the burning in my lungs had indeed gone away. He asked how far of a drive it was. I told him not even ten minutes. He asked if I felt safe to drive that far. I said yes (after all, I had driven to the hospital in far worse shape). He then gave me a run-down.
 
The COVID swab would not get back for testing until late the next day (there are no testing facilities in this region; all specimens are picked up daily and trucked in to the capital city some 3-4 hours away for actual testing). His educated guess was that I had a viral infection, so he prescribed three more days of Prednisone. This as-yet-unnamed infection had triggered an asthma attack, so he directed me to keep the inhalers I had already taken -- two puffs of one twice per day and two puffs of the other one every 4-6 hours as needed. They would contact me with the results of the test once they had it, if it was COVID or influenza, I might be asked to return for further treatment. (Personal aside: I don't think it's COVID, as I've had it twice already and both times it presented like strep throat. This does not line up at ALL with my experience this week. But maybe a different version would cause different symptoms?)

I packed my colourful collection of new inhalers and went home.
 
The next day (yesterday) I was tired but feeling surprisingly good, considering. I took all the inhalers as directed and filled my prescription. My boss had already found someone to cover all my shifts for the week and told me to focus on resting.
 
I thought a lot yesterday about my cousin. Playing with her siblings at the playground across the street one Tuesday evening at 7:30, dead in an ER bed by 10pm. Tuesday nights were tainted for years following that one. Tuesday nights in April were the worst of all. And here I was fighting the same monster that killed her eleven years less three weeks before.
 
The losses echo in my head. Eight hours to dead. Three hours to dead. Healthy to ER in three hours. It seems hours aren't really that long, and yet within each one hangs an entire life in suspension. When lungs hit a wall, they hit it hard and fast. Somehow Brittney lived like this every day for 22 whole years.

Today I feel measurably worse than yesterday. I've set a timer for the 4-hour inhaler and am taking it EXACTLY every four hours (not seeing if I can stretch it to five or six hours), but I'm not sure it's helping as much anymore. I am considering going back to the ER. The burning has not returned, and the cough is not quite every single breath yet, but my chest muscles are getting fatigued again and there is a distinct sense of pressure. At what point do you go to the hospital? How close was I to death on Tuesday night, really? Should I have gone sooner? How bad is too bad?
 
I don't feel that this will be my last post on here, however life is only dealt out to us in hourly doses and none of us really knows how many doses we have left.
 
If it is, thank you for being here. Remember me as a quiet courageous person who felt whole while writing and dancing, who loved her husband, her friends, and her family dearly, who could do nothing but rely on the scandalous grace of God (as she was not capable of earning His favour). Play some Daniel Amos or White Heart and dance for me. Maybe learn some choruses from the Nachmo Alphabet project.
 
If it is not, then I look forward to writing in this composition window again soon.

In the meantime:
 
 
 
 
(Don't think I wasn't tempted to do a Rick Roll there.) 

28 June 2025

The Unborn Baby That Changed History

Content warning: death, child loss, abandonment, family trauma, mention of abuse
 
I have long wondered why I can be so angry, bitter, and distant. After 2015, that makes sense, but why was I already walking with an emotional limp before that phone call saying my uncle had cancer?
 
The other day, while cleaning the kitchen, I got thinking about my first experience with loss -- so long ago and at such a young age that until this week I had not categorized it as such.
 
In 2000, not long after the birth of my brother, my parents announced they were having another baby. I was delighted. I loved my baby brother, and I wanted very badly to have a baby sister as well.
 
In the fall of 2000, my mother went for a routine doctor's appointment. The doctor could not hear the baby's heartbeat, so she was sent -- with some urgency -- to the local hospital for an ultrasound. In that in-between time, I was told the truth -- that they could not hear a heartbeat -- but I was also told it was possible that something was blocking the stethoscope, hence the ultrasound. This was explained so calmly and in such a matter-of-fact way that while I do remember praying that the baby was okay, I was mostly convinced that everything would be fine -- the ultrasound would find the baby safe and sound.

Someone took me to dance class, I don't remember if my mother snuck me over between appointments, or if my dad or grandma took me.
 
An hour later, I left dance class and headed to the parking lot. Dad was waiting for me -- Dad never picked me up from dance. Even though I thought it was perfectly logical that Mom was still in her appointment, I knew somewhere in my soul that the baby was not okay.
 
I don't remember when or how it was explained to me -- probably on the car ride. But there was no sugarcoating (even as a child, I hated it when people danced around an issue, and my parents largely respected that). The baby, at 17 weeks, was dead. When I asked if the baby was going to stay in my mother's 'tummy,' Dad explained she would have the baby like normal (I was familiar with the concept from my brother's birth), only it wouldn't be alive when it came out. He also told me that would probably happen that night or the next morning, not in the springtime like it was supposed to.
 
I saw my mother only for a few seconds when we got home. She looked terrible (she usually did when she was pregnant -- she never had a single easy pregnancy, and it was only another year or so before I started to wonder why she kept putting herself through all that awfulness). She retreated quickly back to my parents' bedroom, and Dad put us kids to bed.
 
I don't remember much of the next morning. Dad told us (or at least me) that the baby had been delivered the night before. I don't remember if Mom was there at all.
 
I do remember over the following weeks how Dad would occasionally check in with me about it, to see how I was feeling about it. While I was old enough to understand death and emotionally connected enough to know I was sad, I didn't have the vocabulary or emotional awareness to go much deeper than that. He shared with me that he was sad and upset too. He also told us how his mother had also lost a pregnancy when he was young. He invited my grandparents over for coffee one night to talk about it. My grandmother shared that she had actually lost two -- news that surprised even my dad. She told the stories of both losses. Knowing her, she probably offered a lot of comfort and cried with my parents, but I don't actually remember that.
 
A few months later, my parents announced that they were expecting again. The doctors kept a much closer eye on her this time, but things progressed well.

At her 16 week checkup, the baby had a strong heartbeat and was moving well. At 17 weeks, my mother went to her doctor's appointment. The details in my memory aren't nearly as clear. But I remember her saying she hadn't felt the baby move in a couple of days, and then somehow I heard that this baby, too, had died.
 
In retrospect, this was the one that altered my mother forever.
 
I didn't realise that till this week, in 2025. I had wondered for years what had happened to the fun, kind, gentle woman who raised my sister and me, who took us to the library and baked cookies with us and showed us which blades of grass made the best whistles, why suddenly she was replaced by this screaming ball of rage with an absolutely hair-trigger temper. I'm shocked I didn't make this connection before.
 
The next few months were a whirlwind of specialists appointments as the doctors tried to figure out how my mother lost two pregnancies at 17 weeks within six months of each other after having three perfectly healthy children -- the youngest of whom was barely a year old. We, the living children, spent more time at my grandparents' and my aunt's house than we did at home, and as the oldest, I was in charge of my two younger siblings. My parents became strangers to me. After the first loss, my parents had held space for our emotions even while they were openly processing their own. After the second one, they disappeared. I lost them too when that second baby died.
 
By the time my mother's violent morning sickness started again, she was broken and terrified. She tried to hide it, but there was no hiding her symptoms. At eight years old, I was already a veteran of spotting morning sickness. I called her out, and she swore me to secrecy until she was past the 17-week mark. I kept that secret, and it worked... that baby is my little sister, and she is entering her third year of college.
 
It was around this time, I realise now, that the rage set in. She had always been opinionated and a bit fiery (I had to get it from somewhere), but after my rainbow-baby sister was born, my mother would scream bloody murder at anything that moved. In a house of four children under ten, there were a lot of things that moved. I remember writing in my diary many, many times how she would scream at us if we breathed too loudly. I spent the remainder of my childhood trying to figure out the triggers that would set off her screaming rages, but never succeeded in cataloguing them all. Seven months after my sister was born, I developed depression.
 
It's obvious now that that depression came as a direct result of the loss, abandonment, and verbal abuse from those three years. I still suffer with depression today. It has impacted my education, my friendships, my decision-making, my career (both of the ones that I straddle independently), my faith, my hobbies, and my marriage. If the depression doesn't kill me directly in the end, it will still be etched on my heart when it stops.
 
My mother's rages continued until I left for college at age twenty. My youngest sibling at that time was three years old. That was the longest my mother had ever not been pregnant since before she was pregnant with my brother, the one before the miscarriages. My entire teen years had been a cycle of violent morning sickness; long, dramatic, difficult deliveries, and white-hot rage -- all of it hers. I raised all the post-miscarriage siblings because my mother was either too sick or too angry to do it herself and I couldn't bring myself to let those helpless babies suffer for something that wasn't their fault. I'm still not convinced it's a coincidence that the baby factory stopped when I left home.
 
Thinking back on all of this, it's not as much of a surprise why I all but stopped being human after my cousin died. Something in my soul remembered the deaths of those young babies all those years before and remembered how I was left alone, overburdened, and screamed at for every. single. misstep for a full decade in the wake of those losses, and it knew I could not go through that again.
 
This fall is will be 25 years since that first baby died and my life was irrevocably changed for the worse. I don't know what I can do at this point. Knowing why my mother's behaviour shifted so suddenly is helpful, but it doesn't take away the pain of having to choose which of my siblings to shield with my own body and which ones to leave exposed to my mother's rage -- whose cries I had to listen to helplessly as I was only so big and couldn't protect them all at the same time. It doesn't change the fact that my sister and I have basically no relationship because I prioritised the younger, weaker siblings over her and had to harden my heart against her pain because I couldn't handle being helpless in the face of it. It doesn't change how I've spent decades feeling like I wasn't wanted and that my parents were desperate to replace me with the next new baby rather than be content with the ones they already had. It doesn't change the fact that I dissolve into wild, uncontrollable, suffocating sobs the second anybody raises their voice at me or speaks with the very slightest of harsh tones because all my hear is my mother screaming at us that we're all failures and how she didn't want us.
 
It's nice to have a starting point, I guess, but I still don't know where to go from here. 

28 April 2024

Nine Years / Yesterday

Nine years ago my cousin, age nine, drew her final tortured breaths into burning lungs.
 
This year marks the epicentre. She has now been gone as long as she was here.
 
It was about 9.45pm, with the last gasps of a golden sunlight running lazily across the wooden floor when my mother hung up the phone and made the pronouncement of death to me.
 
My cousin left us on the coattails of the sun as it dipped away from us into space. Every year as the days lengthen, so does my dread... more daylight to carry my loved ones away.

It still feels as if I'm sitting there on that chair in my parents' dining room. It's been nine years of sitting on that chair.

I've graduated college. I've gotten married. I've moved multiple times. I've rewritten a literal novel. I'm still sitting in that chair at my parents' house. I'm still seeing the golden sunlight take my cousin away. I can still see her face on the Skype call the last time I saw her at Easter -- you know, the holiday where we celebrate Jesus' resurrection and talk about how He conquered death.

She had two weeks of breaths left in her and none of us knew. My uncle, who had been diagnosed with terminal cancer eight months before and had already outlived his prognosis by Valentine's Day, had another four years of breaths in his lungs. Yet somehow this lively, spirited little girl running around only had two weeks of air left and none of us knew.

15 April 2024

The Drafts Of Yester-Decade

Recently I went way back into my blog drafts folder... and I mean way back. I often scroll back about 2-3 years, but this time I went all the way back to the very beginning, to the first couple of posts I wrote back in 2010 and never published... probably for the first time since I wrote them.

There was a lot of little stories of my life written there that I had forgotten about. And in a way those made me sad. I knew I was a brighter, happier person then, but reading these posts has put into sharp contrast just how much Brittney's and my cousin's deaths destroyed who I used to be... and who I wanted to be.

I still miss that person.

The other day I contacted an old college friend who I haven't spoken to since 2020, when I was banned by my in-laws from anything I used to do or to be. I've been getting tired of being locked in the prison of my own mind, and I'm starting to rebel. I've volunteered for a local theatre. I'm starting to listen to music again. I'm starting to text people back. I'm starting to read the Bible and watch church services again.

I want my life back.

That may never happen. In September, I sustained a back injury at work, and seven months later, it is causing more issues than it did the week it first happened.

I have not yet brought up the subject of future dance endeavours with my physiotherapist. They know I have a history of dance, but they haven't asked for details, and I haven't mentioned it. I haven't needed to -- there are still no dance opportunities here anyway.

I am a different person now than I was fourteen years ago, but I'm not convinced it's a good thing. Perhaps I made some decisions that looked stupid -- but honestly, I made those decisions from a place of deep trust, and I never felt more free and 'whole' than I did back when I was living out on a limb every day of my life.

The freedom and joy in those old posts are palpable, even after sitting on a dusty server somewhere for well over a decade. I have not felt that since before my uncle left my aunt in January 2015. I was 21 years old.

All these tragedies I never asked for ate up all the best years of my life. My body was a well-oiled machine, and my mind was sharp and quick. But it was all wasted as I spent those years drowning in an endless ocean of grief. Now the grief has dulled, but both my body and my mind are no longer what they were. I wasted all of that potential, all those years... on something that wasn't even my fault and was completely beyond my control. It's so unfair. It's so unfair.

I'll never be able to get those years back.

28 April 2022

If

It's now seven years since my cousin's sudden death. This is the first year that I haven't been a complete basket case the month of the anniversary.

That's not to say I've forgotten. In fact, the opposite. Her death has sunk so deeply into the fibres of my muscles and the neural pathways of my brain that in many ways, it's simply a part of my body now. The way I walk now would not be the same way I would walk at this age if had she not died that day. There is no separating me from that night because to take everything that her death affected out of me with some magic vacuum would inevitably take away sinews, bone, and blood. The very shape of my heart -- my blood-pumping organ -- would be altered.

I'm not saying that's a good thing. I'm simply saying that that experience and me -- the person I am at the core of my being -- are inseparable. Even if my mind forgets one day, my body never will. Every cell of the past seven years has been built on that night.

What if she had not died that day?

With every passing day it becomes harder to imagine. I no longer remember what it was like to not feel that hollow ache of loss. I can't fathom what my faith would be like had my prayers for her life been answered. Perhaps I never would have turned my back. Perhaps I would still pray regularly. Perhaps I would still have friends and those in authority at college would not have given up on me. Perhaps my marriage would be better. Perhaps my in-laws would think I was nicer. Perhaps I would still be the inspiration I had wanted to be.

If she had lived... if she had lived, I wouldn't be so bitter and apathetic and numb now. People who tell you bitterness is a choice have not gone through the hell of loss, and if they have, they're lying. Bitterness is inevitable when everyone you love dies, when the few who live turn their backs on you after promising they would be there for you no matter what. Sure, the Bible says 'rejoice,' but even Jesus screamed on the cross, 'why have You forsaken me?'

If she had lived, I could be the happy person that everyone wants me to be. I wouldn't carry all this pain around with me, in the very marrow of my iron-stripped bones. No amount of counselling or therapy, no matter how specialised, will ever be able to suck her death out of the cells of my body. You could wipe my brain clean like a brand new hard drive, but my muscles will remember. My joints will remember. My heart will remember. My brain may not be able to tell you who, but my body will know that someone is dead who wasn't supposed to be. You can tell me it was her time all you want, but you're wrong. It's never time for a nine-year-old to die.

You can tell me it was Satan all you want... but God is sovereign even over Satan and He did nothing. Just let him waltz in and take her like a five-cent candy in the bowl at the bank. As if she was nothing and meant nothing. As if he (and I'm not sure if I mean God or Satan) thought we weren't going to notice.

If she hadn't died, I would never think of God like this.

Maybe this is what God meant when He said He would harden Pharoah's heart. I wish I could come back. I wish none of this had happened and I could love God again; I really do. I miss those days when everything was so clear. Difficult, but clear.

If she hadn't died, things would have been so much different... so much better. I could have been the person I should have been. I can't anymore. I can act like I am, but I'm not that wonderful person at my core anymore. And I wonder why I was spared when letting me live and her die only served to turn me into this emotional black hole.